Π.Ε.Σ.ΠΑ.

A EURORDIS report on the challenges faced by displaced Ukrainians affected by a rare disease - Moldova 14 Ιουνίου 2022
date_published: June 2022 June 2022 This second report in the series of EURORDIS' reports on the challenges faced by displaced Ukrainians affected by a rare disease focuses on the support provided to the displaced Ukrainians living with a rare disease in the Republic of Moldova. While its own population amounts to only slightly more than […]
EFPIA-EURORDIS Joint Statement on Patient Access to Medicines for Rare Diseases 14 Ιουνίου 2022
date_published: June 2022 June 2022 Patient access to oprhan medicinal products (OMPs) across Europe remains imperfect, inequitable, and routinely delayed. EURORDIS and EFPIA, which share the goal of ensuring broader and faster access to OMPs to all European patients, have joined forces to propose impactful solutions. This joint statement presents the output of a structured […]

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